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Physical Therapy for people with hEDS/HSD (especially in NJ)
If you have hEDS/HSD then I am sure that you are not a stranger to…
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MyID Medical Alert
Product Announcement! – Medical ID Bracelet that tells our story - https://shop.getmyid.com/ We all know…
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Disclaimers
Last updated: March 11, 2024 Interpretation and Definitions Interpretation: The words of which the initial…
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It’s Thirsty Thursday!
A year ago this week I started doing weekly infusions for my hEDS/Dysautonomia/POTs diagnosis. They…
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TSA (actually) Cares
My family and I like to travel but obviously it’s not always easy to do…
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To Shower or Not to Shower…What a Question!
I’ve seen a lot of people comment about how difficult showering can be and asking…
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It’s Not a Cane, It’s a BBG Stick
In 2022, before I officially received my diagnosis, I was suddenly having trouble with balance. …
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The Middle-Aged Hooker and Her Pimp
Over the past few years I have had to make some changes in my hobbies…
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I am a Zebra
Let me introduce myself – my name is Patti-Jo and I am a “zebra” (people…